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Patient stories

Coping with the diagnosis of leukaemia and the subsequent treatment and uncertainties is extremely difficult for children and their families.

Leukaemia affects each child and their family in different ways.

Below are the stories from families who have kindly offered to share their experiences to help others understand what it’s like to live with leukaemia.

If you would like to share your story, please email us your experience and contact details.

Rose Kelly

Rose Kelly

Bone marrow failure at 5 months old.

Rose's diagnosis was the beginning of an arduous road to recovery from infant acute lymphoblastic leukaemia.

Rose’s mum, Alison, tells her story.

Read more about Rose Kelly

Hollie Evans

Hollie Evans

More than a year, and countless visits to the doctor. Finally a blood test led to a diagnosis of acute myeloid leukaemia(AML).

Hollie’s mum, Hayley, tells us her story.

Read more about Hollie Evans

Riley Cameron

Riley Cameron

The symptoms of leukaemia are notoriously difficult to identify.

Symptoms of a ‘sickness bug’ didn’t improve for eight year old Riley Cameron. A series of visits to GP, A&E and even the dentist eventually led to a diagnosis of leukaemia.

Read more about Riley Cameron

My brother George

Mary and George Hawkins

When a child is diagnosed with leukaemia, we often forget how deeply this affects the lives of their brothers and sisters.

Only 7 years old at the time, Mary Hawkins tells us what happened when her 4 year old brother, George, was diagnosed.

Read more about My brother George

Lex Stephenson

Lex Stephenson

4-year-old Lex was on a family holiday in Turkey when he fell suddenly and dramatically ill and was air-lifted back to the UK.

Lex's mother, Lee, tells their story.

Read more about Lex Stephenson

Yvonne Dugera

So many different symptoms, but nothing pointed to leukaemia.

At last the blood test told the terrible truth. An extremely ill Yvonne began a gruelling journey to recovery.

Read more about Yvonne Dugera

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