Hollie Robinson was four when she was diagnosed with acute lymphoblastic leukaemia (ALL). She is now 14 and has been in remission for 10 years. In her own words, she shares her experience of living with the disease.
"My name is Hollie Robinson Marsh and when I was four I became ill. My mum started to get worried because I was ill and I hadn’t got better. After a week, she took me to the local doctors who said it was just a virus and sent me home.
After a couple of days, nothing had changed so my mum took me back as I was still very lethargic but we were sent home again.
Photo: Hollie during her treatment at Great Ormond Street Hospital with Diana, Princess of Wales
When my mum took me back for the final time, she told them to do a blood test and then we went back home.
Less than a couple of hours later, we got a call saying to come back to the doctor and my mum was told to bring someone with her.
When they told my mum that I had leukaemia, she was devastated like the rest of the family but I didn’t really know what was happening.
I was taken from the local doctors to Northwick Park Hospital and then on to Great Ormond Street Hospital so I could have the best treatment.
Within days I had had more blood taken out of me than was probably left inside me. I was given so many injections, probably more than my whole school put together and I still didn’t really know what was happening to me.
When it became harder to get blood out of my veins, they gave me the choice of having a line (a central line) put in or a box (a portacath) put inside me so they’d only have to use one place. I picked to have a box put in so I could still go swimming.
Even though I was ill, I was still very hard to handle. As soon as a doctor came into the room, I would hide under the bed and the doctors would have to come under the bed with me if they wanted to give me injections.
Finally, I was let out of hospital but I had to go back each week for a blood test.
Even though I didn’t enjoy having leukaemia and I wouldn’t want to get it again, me and my family made some lovely friends who we still see today.
The one thing I did miss was school. I loved school and seeing all my friends. When I got ill, I didn’t really want to miss much school but, when I did, all my friends sent me cards and pictures. My teacher was very nice and sent my school work to me.
I have now been in remission for over 10 years. Although they never give you the all clear, everything is going well and I don’t even have to go back until I’m 18 – and that’s four years time."
Photo: Hollie with Chico at the Amazing Great Children's Party
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